Monday, November 26, 2007

What's normal anyway?

A week from tomorrow I will have my last chemo treatment. I can't say I'm looking forward to the treatment, but I am looking forward to it being my last.

The past several months have taught me some lessons about what's important in life and what isn't. Cat hair all over the house and not having the energy to vacuum it up, well, it's not such a big deal. Eventually it'll get vacuumed! Being able to work from home and to keep my job and pay my bills and even indulge my Target habit during this time, that's what they call priceless.

What's been hardest for me is giving in to the fatigue and flat out inertia that the chemo brings on. I've found out the hard way more than once what it means to push myself too far beyond my limit.

Like this weekend when Friday and Saturday I was feeling close to "normal" ... that is, I felt I had the energy to clean off the front porch, to put away into the garage the multiple flower pots and gardening implements staggered around the back yard and the back porch, to put up some Christmas decorations, to shop at the grocery store. And then on Sunday I was down for the count. Not a drop of energy left ... all I could do was lay in bed until I was able to move downstairs to lay on the couch. That's my new "normal" as my doctor would say.

I probably wouldn't have had such a Sunday slump if I had been less of a stubborn girl who has to do what she wants to do right when she wants to do it! But that's me when I'm not sick, so why would I be any different when I am? That is, why would I let cancer change me that much?

That said, my doctor has said that it will be 6 to 9 months after I finish my chemo treatments before the side effects of the chemo are completely a part of my past life, so, based on that, I think I better learn to pace myself. So, okay, I guess I've learned that I should not push myself too hard on any given Saturday. I've learned that just because I think that I can do that "one more thing" I probably should not do it before resting a while.

My biggest problem here though is that I am fighting cancer, and I'm determined that I will not let it beat me. I mean, I've still got a lot to do in this life!

And really, after all that's said and done, that's my new normal.

Thursday, November 22, 2007

Thanksgiving

Over the last several days, I've been making a mental list of all that I have to be thankful for ... and I find that the list is never ending. Here in no particular order of importance is what I'll call my short list. Know that if you're reading this, you are on the top of the list!

My friends and family
My cats
My home
Birds, bees, spiders, trees, the mountains, the ocean and its sandy beach, leaves falling in November, crocuses bursting forth in February, robins hopping around the backyard in April, cicadas humming in June, hummingbirds visiting the feeder in July, crickets singing in August ... the all-year round beauty of the natural world
not having hair to wash, style or pay to have cut!
knowing my hair will grow back and that I'll have to wash, style and pay to have it cut again!
books and the ability to read them
music and the ability to hear it
art and the ability to see colors
windy days and wind chimes
football on Thanksgiving Day
great food, good drink
Christmas time and holiday cheer
laughter
tears
sunsets
sunrises
the power of love
the power of the human mind and spirit
the power of healing
the power of God

There's so much I have to be thankful for ... it's impossible to include it all ... Mostly I am thankful to be alive and that I have the chance to consider all I am blessed with daily.

Happy holidays all!

Friday, November 16, 2007

Being needy

My mother says that I had a mind of my own from the time I was two. She says I've always been independent, stubborn, decidedly individual. One of my best friends calls me “fiercely independent” and I strive to live up to that most days.

My dad was a firm believer in "if you want something then go get it, or want something done, then go on and do it." Like the time I was 12 and wanted the itsy bitsy spider on the wall of my bedroom to go away. I called him in to get it ... he said "get it yourself!"

On top of that, I am the oldest of four children and as the oldest it was thrust upon me to be the "responsible" child. That information of course was not translated to my siblings, especially my brothers who did not consider me to be the boss of them, even though I tried to be!

So you may be able to understand based on that little bit of info how hard it is for me to ask for help or to be the one in need. Throughout most of my life, if I needed something to be done, I did it, and because I'm so used to taking the bull by the horns myself, half the time I don't know what I need help with until I'm faced with that thing! And really, I like to take care of myself and to be self-sufficient. I don't find that a burden.

Sadly, these days, though I do need help with things, when people ask me what I need, well, I am so unaccustomed to being in need that I cannot answer the question!

What would help here I think is if people would give me a hint as to what sort of help they are able to offer. What's their strength, time availability, interest and energy level?

Sometimes my biggest challenge seems to be getting motivated! Other times my issue is that the drive to the store and back is more exhausting than the actual shopping is so maybe it’s “I’ll take you to the grocery store, or WalMart or the mall, or Target.” Or, like one of my friends has already offered to do, “I’ll come take out the trash.” Or maybe you can help hang my Christmas lights outside. Or, come rake leaves, or help clean up the side yard or move the old pots off the porch to the garage. Maybe you can just come and hang out with me for an hour and tell me stories about your life. Like I said, most of the time I can't name what I need, so if you tell me what you can, want or are willing to do, that will help me think of something I really do need done!

Cancer has a way of making you face things about the world and about yourself. You learn what you’ve taken for granted. You start considering what’s really important in the world. My friends and family ... you are what matters most and I can't thank you enough for your support over these last several months. Just knowing you're there ... that is enough!

Okay, so it’s hard for me to ask for help or to be the one in need, but I’m trying! Thanks to all of you in my life who are helping me to learn!

Tuesday, November 13, 2007

Chemo #5

Not to be confused with Love Potion #9 ...


Today was chemo day -- chemo treatment #5. That means after today I will have only one more treatment to go! Today my doc said that the end of chemotherapy treatment does not signify the end of side effects ... those tend to go on for several months after the treatments are over. But, it does signify the end of treatments!

For anyone reading this who wants to know more about the chemotherapy regimen I've been undergoing, here's the skinny: In some reading I've done, the treatment plan that a person undergoes is called a recipe. Believe me, this isn't like any recipe most of us are familiar with ... or want to be. My chemo "recipe" is TAC -- Taxotere, Adriamycin and Cytoxan. Sounds good eh? The side effects are not like any hangover I've ever had and too numerous to list here. Take a look at www.breastcancer.org/treatment/ if you really want more info. Keep in mind that my treatment is taking place at VCU's Massey Cancer Center and that my treatment plan was drawn up for me by my doctor ... who rocks! And this particular treatment plan or recipe that I'm following is relatively new in the United States. How European of me!

Tomorrow, I'll go back to the Massey Cancer Center and get a shot of Neulasta, a drug that helps to increase my white blood cell count. That helps my immune system. Unfortunately it really doesn't help to reduce any of those other lovely side effects. But hey, it works to help keep me from getting a really bad cold. Okay, so does avoiding sick people! HA!

So now what I really want to know ... anybody got the recipe for Love Potion #9 cuz after all this chemo and its side effects are over I think I may need some of that!

Sunday, November 11, 2007

It's the little things

That's what they say matters in life. The little things.

I'm finding that to be very true these days. Like a getting a phone call from a friend. Receiving an "I'm thinking of you" card or e-mail. Finding out that most fresh fruit tastes good and doesn't make me sick later after I eat it! Getting unexpected presents (like my brother bringing me -- quite unexpectedly! -- his ginormous flat-screen, rear-projection TV yesterday because he and his family got a new TV as an early Christmas present. What a great surprise!).

But what I really discovered yesterday is that giving something to someone else ... giving something of my own that might make a small difference in someone else's life ... that's even more important than getting something myself.

So how did I get there?

As I mentioned, it's been a challenge to find foods that actually taste good and that are good for me, hence my happiness at finding out that some fruits still taste good. Yes, I've mentioned that carrot cake and chocolate really taste good, and I suppose indulging the occasional sugar fix is not the worst thing a girl can do. But most of the things that I used to eat, well those are the things that generally don't taste like they should and in some instances flat out taste like crap! And cold stuff doesn't taste as good as warm stuff. I should note here too that my eating issues go beyond the taste factor. Without getting too graphic, let's just say that I need to be careful not to upset my GI tract and generally that means staying away from high fiber foods like beans, just for example.

And I guess I should point out that the diet I used to eat was pretty much one that was fairly balanced and filled with healthy stuff like fresh greens and salads, beans and rice, fresh veggies and fruits -- most of which right now are not good options for me. I usually cook my own meals and made a lot of Mexican and Italian foods. I grilled steaks, baked and grilled different kinds of fish, roasted pork loins, ate barbecue. I avoided those things that are bad for you, like fried foods, white breads and pastas, sugar. I loved to try new things and considered myself adventurous and creative when it comes to food.

With the onset of chemo-blasted tastebuds, I've been more than a bit overwhelmed and challenged in the kitchen, and while in some ways it may be a good time to experiment, given my energy level it's really just become easier to eat the same stuff -- baked salmon and rice, baked chicken and rice, and baked breaded shrimp or flounder, sauteed spinach, steamed carrots and green beans. I'm finding too that often I'll think something will taste good only to find that is definitely not the case (for example, the carrot soup flavored with ginger and coconut milk that I tried the other day -- sounded tasty and would have been something I'd have eaten in another life ... that day, not so good!), so down the garbage disposal it goes. That's happened way too many times, and I hate to waste food, so like I said, it's easier to stick with what I know tastes okay. But, it's less than creative and hence my food boredom!

So what's the point already, you're asking.

Yesterday I was feeling bored and cranky about my food issues, and even a little more than annoyed because I have a pantry full of foods I can't eat ... marinara sauce, a zillion different salad dressings, pinto and chili beans, black eyed peas and garbanzo beans. Lentil soup. Lots of tomato-based things ... tomato soup, tomato sauce, tomato paste, enchilada sauce (did I mention I love tomatoes and right now anything tomato tastes terrible?? Boo hoo!). Canned tuna (I love to make and eat tuna salad .. but the thought of opening a can of tuna and smelling it right now ... well it makes my stomach wretch).

So I was laying in the bed thinking about all that stuff in the pantry ... going to waste. It's sinful and wasteful ... there are so many people who right now are hungry ... hey wait a minute.

That's when I thought about someone other than me. It's about time!

I went through the cabinet and found that most things that I couldn't eat were still edible in that they didn't have past due expiration dates (well, except one can of tomato paste from 2005 and a soup from 2006, which can I say is not that bad considering!). So I packed up those bottles of salad dressing and the cans of soup and beans and tuna and took them to a 24-hour drop off for the Central Virginia Food Bank with the hope that someone can benefit from my lack of taste these days.

Now, please don't think I am telling this story for a pat on the back. I should have thought of this a long time ago and maybe not have been feeling quite so sorry from myself for the last few months about what I can and cannot eat, considering there are people who are going hungry right this minute and children who will go to sleep without having had a meal ... and in this country. I'm telling you that I did this because it made me feel good to do it, and it was a really small thing to do in the big picture.

So my point here is that while it sounds cliche', it really is the little things that matter in life.

If you would like to know more about the Central Virginia Food Bank, take a look at their Web site www.cvfb.org.

Thursday, November 8, 2007

What's going on?

People ask me … “How you feeling today?” or “How you doing today?” and I ask myself, “Do they really want to know the truth?” and more importantly “Do I really want to tell them the truth?”

First of all, I do believe that all my friends and my family absolutely do want to know the truth. So generally the first question is not hard to answer. It’s that second question that stumps me momentarily. Do I want to speak the truth? Saying it out loud makes it that much more true.

All sorts of ideas and concerns race around and through my head. First I think, what reaction will I get and what good can come of it if I do tell the truth? What can someone do about it?

Whining about my troubles never seems like a good idea. Is that a southern thing or something engrained in me by my midwestern parents? Either way, it just doesn't seem polite to be whining about how bad you feel. And it seems like it puts other people in a bad spot. Okay, not that they think that ... that's me I guess ... where does that come from? Maybe being Catholic is where that comes from ... that is, maybe what the nuns taught me a million years ago still haunts me now! "Nothing can compare to the suffering of Christ, so stop your doggone whining already." Ha ha!

So, to answer the question in spite of that Irish-accented nun's voice in my ear. I don’t feel good at all and the side effects of the chemo are building up -- from fatigue, to chemo brain (more on that another time!), to lack of appetite. No, I don't imagine this all is as bad as the suffering of Christ, but really, it is all about me here. And, yes, I think Jesus understands!

Nowadays I feel tired 110 percent of the time and nothing … nothing, not naps, not full nights of sleep, not moving around and walking or stretching my muscles in the limited yoga poses I know … nothing makes that fatigue go away. Most nothing has tasted good to me for months (which really sucks, I must say!) and despite eating many less calories than I used to (okay there have been some times where maybe I ate some additional sugar where I used to avoid it ... like those carrot cake cravings I had to satisfy, but isn't that healthy cake? and really, can I help it if sugar is among the few things that actually does taste good??). In any case, I haven’t lost weight in spite of my lower food intake, or okay, maybe because of the higher number of sugar fixes. So, my waist seems larger than ever ... and that is really depressing because … well, isn’t it bad enough I feel awkward as hell in the clothes I have because I'm wearing fake boobs that are many sizes smaller than my real boobs were, which makes me feel … well, really abnormal!

I do end up saying that sort of thing to my friends and they are good to me, saying what I need to hear at that particular moment (like Snap out of it! or Sorry to hear that! or the best, Let’s go to Target!), or reminding me that most all of this is temporary, which is a fact that I do know and most days can remind myself of … I only worry that repeating to my friends over and over again how crappy I feel is going to make them sick of me! As in, “she’s such a downer” …

On the other hand, I am still full of sarcasm and am my generally smartass self most of the time, even while feeling like crap. And really, I don’t walk around like Pollyanna, but I do see that there is so much in my life to be thankful for -- my friends and family specifically! -- and I am so lucky on so many levels (like, at least I wasn't born ugly or stupid). See what I mean? So I do have positive happy thoughts in my head as often if not more often than the negative unhappy thoughts.

Mostly, I wonder … and worry … if saying out loud that I feel like crap most days is a bad thing to put out to the universe. I feel I want to speak positively to the universe so that she will bless me with positive reinforcements. But then I think, doesn’t the universe already know I feel like crap? Must be so, and that’s why I have so much positive energy in my life right now!

A side note: Since I titled this "What's going on?" I have been hearing Marvin Gaye singing that song in my head. So I found "What's going on?" online and believe it to be as compelling and relevant a song today as it was when he first sang it. Have a listen yourself on YouTube at http://www.youtube.com/watch?v=Y9KC7uhMY9s.

Wednesday, November 7, 2007

Admission

I think I've been numb for months. Last week I started to feel weepy for no reason whatsoever. Today a part of me is waking up to the reality.

I have cancer.

Yes, I have said that before. Yes, I have heard it bouncing around inside my head. Yes, I can see visible scars ... a bald head. Missing eyelashes. No breasts.

Yes, today I have really truly admitted to myself ... and now to you ... that I have breast cancer.

They say that admission is the biggest hurdle you have to jump when you are facing something bigger than you. So here's to jumping my first hurdle.